Don't neglect your PSA test

Fennellg

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Medical privacy (shame) is just another tactic to keep us sick. There is profit to be made. Follow the money. Drug industry, (you have seen all the ads.) At least cigarettes take a while to do you in. The warnings for these drugs are like a horror movie. Doctors get kick backs from big drug companies. Hospitals, medical insurance companies, food industries, restaurants (big chain ones and fast food). Processed food manufacturers. It’s bigger than you think. Look around the grocery store. How little is fresh food. Most everything comes in a box or can.

It’s almost been 3 years and cvs still calls me wanting to know why I no longer take any medication. I have explained dozens of times that I am metabolically healthy, no need of their drugs. It’s like they are trying to win back a client, or they don’t want the information to spread. It’s puzzling. My doctors office is worse. I go to see them when I have a problem. No problems no visits. My blood work always comes back good. Better ways to spent my time and money.
 

DuroDu

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Biopsy my urologist is avoiding because of possible infection. That will be the last step.
We do regular check of PSA every 3 months and antibiotic when over 5. Than drop to 3. Twice already.
We just did MR on 3Tesla. The prostate is clear of cancer, but PSA is still from 3,5 to 5-5.
 

RCinNC

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Scott covers some important ground in his post. They do rate it on a Gleason score; I don't actually recall what mine was. Some of the events of that time period after hearing "you have cancer" are kind of a blur. When I got the results of my genetic test (I think it was called a Prolaris test) the urologist gave me some information about the stages of prostate cancer. Stage 1 was called active surveillance, where no intervention was necessary and just monitoring the PSA for changes was in order. Stage 2 was surgical intervention, when the cancer should be treated with either removal or the implantation of radioactive seeds, and Stage 3 was when the cancer had metastasized and spread to other parts of the body.

My urologist recommended the prostatectomy over the seeds in my case. He fell that it was a more sure fire way to eliminate the problem permanently. He also told me that many patients he had treated had a less tolerable recovery from that surgery than from the prostatectomy. Also, if the seed implantation failed to kill the cancer, they couldn't later do a prostatectomy, though I'm still unclear on
why.

He was pretty clear that sexual dysfunction and incontinence could by side effects of the surgery, and that so much of that would depend on the architecture of the patient's prostate. Everyone's is a little different, and some can be removed with no issues and some can't. Frankly, at 59, the sexual dysfunction would be a drag, but it wouldn't significantly alter my lifrstyle. It would be more of a psychological burden for me. The incontinence was more of a hurdle for me, because that really would alter my lifestyle though my urologist told me that 90 percent of men report no problems with that after 6 months. A lot of the issues with incontinence are due to how your bladder is constructed. When they remove your prostate they have to cut your urethra and then reattach it to your bladder afterwards. How large the opening is on your bladder can determine how good or bad urine control will be. Surgeons have no way of knowing until they actually get in there.

I also talked to my family doctor about his opinion, and he brought up a point that a lot of doctors don't really cover; the psychological toll that having cancer can take on you. For some people, just the idea of cancer in their body is a heavy load to bear, if there's another alternative. My family doctor is in his 40's, so for him being able to retain sexual function would have been more important and he would have opted for the seed implantation. But for me, I already had a form of cancer about four years ago. I had a neuroendocrine carcinoid tumor in my lung. That was a pretty simple fix, they just removed one of the lobes of my lung and that was it. But having had cancer once already, I found that I couldn't take a "wait and see" stance with it. If there was a way to remove it, then that's the way I wanted to proceed.

Believe me, recovery is no picnic. I'm only four days out from the surgery, so I have no idea how it will all turn out for me and what my new normal might be. But since the cancer is out of me, I do feel like a load has been lifted. I wouldn't try to advise anyone what to do if they find themselves in my shoes.
 

Fennellg

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I have seen some compelling YouTube’s. They went keto or carnivore. And went on some prolonged fasts. While seeking conventional treatments.

Some reversed stage 4 cancers.

My mom caught stage 4 colon cancer. The doctor said it was not uncommon to take the time you have and forgo aggressive treatment.

My dad was right for all the wrong reasons. He said you will fight this who is going to cook and clean for me. I drove her to the treatments. She was dealing with the chemo and radiation extremely well. Every one else was sick as a dog. Many for days. My mom would go home take a nap wake up and would be fine. The only symptom was a metallic taste in her mouth. It would pass.

Well when the dust settled, asked her how she did it. She said she asked the nurse how to beat this thing. The nurse said she noticed the one who did not eat faired better. My mom lost a ton of weight. She was not eating much.

She lived 15 years.
 

Madhatter

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Fennellg, cancer is such a evil it is different for each person it seems .... I can see how not eating might starve the cancer ... that's the nature of a cancer , hungry little monster , so lets feed it a poison , but not enough to kill the good cells.
so glad you had your mom for 15 more years.
 

RCinNC

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For months I only ate once a day, and cut out most of the carbs and sugar in my diet. And it does suck at first, like just about any radical change in lifetime habits. The necessary treatment for the cancer was a good motivator to get my shit together. Intermittent fasting and exercise not only helped me lose the weight I needed for my surgery, it also got me off high blood pressure medicine and dropped my A1C and cholesterol back to normal levels. And as soon as I get through the initial four week recovery for this, which my urologist says is the usual time, I'm back on the bicycle. There's no way I'm going to let myself ever get as heavy again as I was before this surgery; if I hadn't been such a fatass back in December, I'd already be through this and not missing the beginning of a terrific riding season.
 

Fennellg

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Well cancer has one fuel (food) sugar. That’s how they test for it. They mix a sugar mix with something that will show up on a scan. The mix concentrates in the cancer area because cancer eats sugar only. So in this regard cancer is the same for all. Draw your own conclusions.
 

Sierra1

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I never knew that about cancer and sugar. I should have a good chance then. I eat a lot of protein, but not a lot of sugar/crappy carbs.
 

Fennellg

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Think wine, beer, spirits. Cancer ferments. The process requires sugar. That’s why those who limit carbs, sugars and fast fair much better. Those who initiate such measure require less radiation and chemo. Most don’t die from the cancer but the treatments. (Poisons used to treat them). My mom got great advise from a nurse not a doctor. Less poisons and less fuel means a better chance to survive it.
 

Fennellg

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Well given our groups average age, I would suggest an A1C test at each visit. It is cheap and would be good to have a base line and trend.

If your A1C is elevated at all. Consider a continuous glucose monitor to learn which foods are the problem.

I have noticed that a great many members are frugal. Myself included. Walmart sells a meter for under 20 bucks and 50 test strips for 10 bucks. The monitor takes the learning curve away and prevents bias testing trying to get low readings.

Even though I now have a 5.0 A1C I still test 4 or 5 times a day. Weigh myself every day and check my blood pressure every few days. Your weight is the biggest indicator. BMI should be in the green, everything else will follow. May take a little time but it will.
 

Sierra1

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. . . . BMI should be in the green, everything else will follow. . . .
Hate to disagree, but any doctor that still uses BMI, isn't a doctor I would use. It only uses height and weight. So, if a person exercises any amount at all, their BMI will show high because BMI does not take body composition into account. Muscle weighs more than fat.

EDIT: I would have to lose 150lbs to have a BMI on the high side of normal. I currently have a BMI of 44.
 

Fennellg

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It’s a guide. Muscle is not a problem. If BMI is high you can have further tests to determine how much fat you are carrying. It is not a useless measurement. it is just a quick measurement to see if further investigation is warranted.

If your A1C is high I would not take it as gospel. There are false high readings from time to time. I would retest and see if there are any shifts. That’s why I think you should test it every 3 to 6 months see the trend and get a base line.

What is it they always say. Get a second opinion.

What I would caution against is moving the goalposts to make people feel better. Woman’s shoe sizes, waist sizes being overly generous 34 inch really 36…. Relax fit elastic band waist bands giving you another 3 inches or so…. A1C goals have been moved up to accommodate but put health at severe risk….. Drugs being sold over the tv that Cary severe risks and even death and not a word about diet……
 
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RCinNC

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I figured I'd update this thread, since the last time I posted was back on May 12.

I had my first post-surgical PSA test in early July. Even though my prostate is gone, the PSA test can still be used to detect the presence of prostate cancer cells. The tests showed no detectable presence of the cancer. I have to have a PSA every four months for at least the first year, just in case.

There's no denying that the incontinence sucks, but there's light at the end of the tunnel. I'm just shy of three months since the surgery, and the incontinence has almost cleared up. I'm sure that the regular pelvic floor exercises I've done since May have sped up the recovery process. I'll be going to physical therapy in early August just so I can consult with a professional and make sure I'm doing everything I can to get back to normal and regain as much function as I possibly can.

By around mid June I was back to short rides on the S10, and by the end of June I was making much longer rides plus I was able to get back on the bicycle and start getting back into shape.

I posted this mainly so anyone here who ever has to face this same issue will know that you can work your way through it, even though there are times when it can be a real drag to deal with.
 

Vegas Eggus

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Good reminder. Ironically I had reached out to my Dr. yesterday to see if I was eligible for my annual PSA blood test yet. Yes, as of 7-1-24 so I'll be swinging by today to pick up the order and go get the blood test. Been wanting to test the cholesterol as well as she has had me on a different med for that as well.
Been fasting for about a month now. One meal a day and it's usually a "healthier" meal. Will be interesting to see the results.
I've dropped close to 20 pounds so far and think I'm getting close to being able to add back the hip armor in my riding pants. :)
 

RCinNC

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Had physical last week PSA was up slightly but according to doctor still well below any need to worry.
That's where, in my case, I was fortunate that I had PSA testing done on a regular basis prior to the cancer. At the time I was diagnosed, my PSA was still low (it was four point something), which is pretty normal for a guy my age. It was the half point rise from the previous test that set everything in motion. Evidently, a PSA increase of a half point over 12 months is a red flag to investigate further. Without the prior history of testing, I probably would have gone for another full year before it was discovered. There's no way to say for sure if it would have had time to spread beyond the prostate in that time period. Probably not, as I didn't have one of the more aggressive forms of the cancer, but as my urologist would say, "nothing is certain".

After my initial biopsy detected the cancer and I went on active surveillance, I still had to take PSA tests to monitor the cancer. Oddly enough, my PSA actually went down during this period, even though I already confirmed I had cancer. That was weird. At no point during this whole process did my PSA ever reach 6, though I know a guy whose PSA was 10, and he didn't have cancer.

There are multiple reasons that your PSA can increase that aren't cancer; it's why the PSA test is a good investigative tool but it isn't a presumptive test. A biopsy and genetic testing are the only surefire way to detect cancer and determine what type of cancer is present.

Just for information, my experience with the biopsy is that the idea of it is a lot worse than actually having it. I've had two of them, and while it wasn't fun by any means, I'd describe it as no worse than "mildly uncomfortable".
 

AusTexS10

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Hate to disagree, but any doctor that still uses BMI, isn't a doctor I would use. It only uses height and weight. So, if a person exercises any amount at all, their BMI will show high because BMI does not take body composition into account. Muscle weighs more than fat.

EDIT: I would have to lose 150lbs to have a BMI on the high side of normal. I currently have a BMI of 44.
We have a nurse practitioner that runs a clinic at my agency and I told her she should remove the BMI chart from her wall because it is discouraging to think I have to lose 50 pounds to get down to where I'd be rated overweight.
 
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